Rejection Yet Again

This past Tuesday I received a phone call from my lung transplant coordinator, Tracie. She was calling to inform me of my previous week’s bronchoscopy results. They weren’t the words I was expecting to hear, “REJECTION again.” As the pathologists’ reports indicate, it is A1 acute rejection. This summer it was A2, a more serious stage of rejection. Tracie and Dr. Zaas have decided to order me three days of solumederol (by IV) and then a taper down dose of prednisone. I should be ending by late next week. My sister, her fiancée Rod, and my boyfriend Travis are driving up to New England on the 18th where we will stay through the holidays and my 30th birthday! I have a gynological surgery scheduled for January 4th at Mass General Hospital. I hope to be back to North Carolina by the middle of January. I have another bronch scheduled for the 21st. This will indicate if further measures need to be taken to treat the rejection. Dr. Zaas told me yesterday at clinic that Campath, (drug I received during my second transplant) will need to be used again. The down side to this “big gun” medication that it will completely wipe out my immune system again, so I would be on IV Gancyclovir for at least six months. I would remain on the Procrit and Neupogen shots weekly for another year and be highly susceptible to colds, bacteria, and viruses. So let’s cross our fingers that this first round of steroids works!

~Inhale.~Exhale.~Breathe.~

Please continue your prayers for my friend Jana. Also I am remembering my friend Deb Hamlin who passed away this week from transplant complications, my sympathies to her family. To the family of Joey Velucci, keep strong and I am thinking of you all.

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3 Comments

  1. Kristine
    Posted December 13, 2009 at 12:17 am | Permalink

    It will work! Positive vibes.

  2. Posted December 17, 2009 at 10:23 pm | Permalink

    You are so strong!

  3. Kristina
    Posted January 7, 2010 at 11:41 pm | Permalink

    Amber, keep your head up. You are so strong and I know you can make it through this. It is just another bump in the road, right?! If you could deal with A2 rejection in the Summer, then this too can be dealt with. Remember to look forward to getting back to NC and doing Yoga, Pilates, workouts, and maybe some meditation to help deal with the stress. You have a lot to look forward to in the future!! A visit to Florida too!? I can’t wait to see you in March…this will all be behind you:) Love and miss you! Kristina

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