Hi Ya’ll

Hello friends!! I’ve been pretty busy lately, so I haven’t written on this forum yet. We’ve had the good fortune of my sister Susie being here and keeping you all abreast of the journey we’ve been on. She will be back here in N.C. next Sunday, but until then hopefully I can fill in.
Amber was discharged from the hospital, her third admission since we’ve been here, on Thurs. and went back to pulmonary rehab on Fri. There we saw two young women who had had transplants on Christmas weekend (they did 4 that weekend) and they were already out of the hospital and back to rehab!!!! Unbelievable! They looked great! Amber was just emerging from her induced coma in that amount of time. She was told she does not have the luxury of a coma this time, she’ll be up and walking the day after surgery, chest tubes and all. Every day is different for her, some better than others. Fri. she was a ball of fire, Sat. we went down to a hip district in our neiborhood and sat outside a cafe in the sun….75 degrees…but she faded quickly and we went home. Today, Sunday, she has been very low key, calling the on call transplant coordinator to up her steroids and staying on her bipap machine most of the day. Tomorrow she will go to her first real appt. at the transplant clinic (uping it from Thurs.) for blood tests, PFTs, chest xray and doctor’s visit. I think she is relieved she will be missing pulm. rehab for the day (but if I know them, they will have her go there after her appt. is done).
Soooooo, we are just waiting for that call, listening to helicopters flying over our appt. roof several times a day, and just hoping her new lungs will come soon. Amber never ceases to amaze me with her courage and tenacity for life,..she is a warrioress of high proportion and fights her battles with amazing strength…even when she has no strength. She is a lesson for us all.
Thank you all so much for your kind messages, prayers, gifts, cards, calls, and keeping us in your thoughts. We are all way behind in our thank you notes, but please know we appreciate every effort made to comfort and support us. We love you all!!!!!!
Thank you, and God bless you. Love, Laurie