What’s Happening Now

Hello family and friends; thank you for your calls, messages, thoughts and prayers. Amber would like you all to know that she is very appreciative and is having a difficult time responding right now. She is in chronic rejection of her new lungs which makes it difficult for her to breathe, and therefore to go about the activities of daily life. She is, of course, well cared for by her family and is working on gaining weight (eating fattening delicious things) and keeping her body working as much as possible. This consists of passive resistance exercises in bed as well as walking around the house as much as she can tolerate. Her breathing is being augmented with oxygen. Right now, we are investigating new courses of treatment for Amber. As this week and next week progress, we hope to have a more clear direction on what the next step is. We are in the information gathering stage which takes time and patience. We will be posting updates regularly to keep everyone informed about how Amber is doing. Your love matters. Susie